WAG Shoulder dislocation: experiences?

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Apr 12, 2017
Disclaimer: not looking for medical advice, I have done that already at a GP, orthopedic doctor and a PT.

I am very hypermobile, always have been. Because of that, my shoulder will often half-dislocate (subluxate in medical terms) about 3 times a day, in both my left and right shoulder. If you were to push in the right place, you can pop it out yourself. Until I got injured because of it, I did not know it was abnormal. I've seen some specialists now because of it and the only thing that can help me is PT, except the PT says my shoulders are strong enough and there isn't much she can do for me either. They also can't provide me with much info about the future. For all 3 doctors I have seen, I was the most serious case they had ever seen.

Are there any other people struggling with this? Did it spread to other joints as well? Did it get less or worse over time? Or is there really nothing to say for it?
My shoulder never fully dislocated, but would subluxate all the time when I was in my early 20s after years of dance/gymnastics/aerial arts. Even just walking, it would slide in and out of place. Like you, I am generally hypermobile. I was diagnosed by an ortho with multi-directional instability (MDI) in that shoulder. After a year of physical therapy and being "plenty strong" but it not helping, I tried a cortisone shot. It didn't help. I ended up having a stabilization surgery on my shoulder because I was in a lot of pain every day. Recovery was hard, but I am really glad I did it. I was in a lot of pain before surgery, but don't have any pain or issues now (it's been 8 years).

So, probably not the answer you want to hear, but that's my experience. Happy to tell you more if you want.
I had my first real dislocation 2 days ago while sitting in class... I was diagnosed with multi directional instability as well, but for me in all joints. The fact that it is in all joints makes the doctors think that surgery won't help at all. I have another appointment with the orthopedic surgeon in 2 weeks, maybe his mind has changed by then...

No matter what comes out, I'm really scared to dislocate my shoulder again but there's not much I can do about it. They did teach me how to get it into place again when I do fully dislocate, but it's a scary thought no matter what.
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